A fresh booklet for those unfamiliar with European Reference Networks (ERNs) and their role in rare disease patient care, Novemebr 25, 2023

The Directorate-General for Health and Food Safety of the European Commission has just issued a new booklet on European Reference Networks (ERNs).

European Reference Networks are virtual networks connecting healthcare providers, professionals and patient organisations across the European Union (EU) and Norway. The rationale behind their establishment is that no country alone has the knowledge and capacity to treat all rare and complex conditions. Thanks to the European Reference Networks, patients across the EU can have access to the best expertise available. Through these networks, the experts reach the patient, without the patient having to travel to experts who may be located far away. The European Union connects the dots, maximizing synergies between Member States and encouraging the sharing of knowledge and resources.

Download the booklet at this link on the EU official website. Several languages are available.

See also our article titled: “What are the European Reference Networks (ERNs) and why it is important that the pulmonary hypertension community participate in its work” at this link

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Citation

European Commission, Directorate-General for Health and Food Safety, European Reference Networks – Working for patients with rare, low-prevalence and complex diseases – Share, care, cure, Publications Office of the European Union, 2023, https://data.europa.eu/doi/10.2875/701174

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